I am not going to write about what is going on today . Instead I am going to write what life is like for our family.
The biggest thing I soon found out this was even before the kids were diagnosed. That people tended to avoid me, why I just don’t know. I know when the kids had melt-downs which at that time was constant screaming and head banging, people would just look and stare at you and give you a look as if to say those kids are so naughty. No-one offered to help, talk or anything I was left on my own. The best example was I was doing the school run, it was pouring of rain I had perkie walking and pinkie in a buggy, Perkie decided that he didn’t want to walk anymore and just sat down in the middle of a main road. Now people could see that I was struggling with him , did they help no they just beeped their horns and shouted at me. I remember sobbing as I walked home and couldn’t wait to get home and shut the outside world away.
Now a days it is pretty much the same, most of my friends deserted me, they wouldn’t be want to be seen with me . Me and my kids are an embarrassment to them. I have learnt to just get on with things. At times it is hard because you sometimes you just need the emotional support of your friends. I have a few online friends who have been my rock, but at times it would be nice to just sit and have a natter over a coffee. Its like where I live the kids never get asked to play and do you know what it really upsets me that they get isolated like this. At the end of the day it is all due to peoples’ ignorance of autism/special needs. Take Perkie yes Perkie has got autism but thats only part of him the other part, is a very loving, polite little boy that doesn’t understand why the kids won’t say hello to him when he talks to them.There are several more ways you have to change your life but for now I will leave that to a later date.