This post is maybe one of the hardest posts I have had to write but it is going to help me. I will give you a bit of background information first.
Little Gnome was born in January a month early as I had severe pre-eclampsia that developed into eclampsia . I was in and out of hospital all through the pregnancy, had various scans, tests all came back normal. Just before Christmas my blood pressure went sky-high and they couldn’t control it so I got admitted into hospital where I stayed until Little Gnome was born I was only let out for Christmas day. Despite being on a mega high dose of blood pressure tablets and permanent bed rest my blood pressure still went up. Finally the consultant stepped in and said they would deliver Little Gnome the next day. So he was born by the via the sunroof , due to me having 3 previous c-sections. When he was born he couldn’t hold his body temperature apart from that he was fine and didn’t need to go to special care baby unit.
Fast forward 9 months we went to appointment with Pinkie and it was the Speech and language therapist that noticed Little Gnome didn’t like lying on his belly, so she picks him up and he wouldn’t put his legs down to bounce. A referral was made for Occupational therapist , physiotherapist etc.
Present day even more major concerns now he holds his legs up as in a frog position, he favours his left side in fact he can’t work with his right side. No sitting up as he can’t support himself, not crawling or rolling. Won’t put his legs down at all. Not talking only babbling. Can’t wean him as he literally chocks on solid food so is living on baby milk. He screams out in pain especially in the middle of the night
Now he has started to extend his body and sometimes has difficulty controlling his body movements especially his head. Until we get a firm diagnosis nothing be confirmed. There are suggestions of cerebral Palsy. It’s not the end of the world I know that but I feel absolutely devastated , angry and upset. Right at this moment, I feel as if I have let my children down and have failed as a mum. I now have 3 special angels .