The blog The Trials and Tribulations of the Savettes is now moving we have a new home as well as a new name It has changed to Savette.com
Thank you for reading and following the Trials and Tribulations of the Savettes you have all help make it into a popular blog thank you and I hope it has helped some of you as well.
The blog will still be here but no more new posts will be added.
If anyone is linked up to this blog and you wish to still link up on the new blog can you let me know thanks
Hope you come and enjoy Savette.com
As some of you will know as you see the #specialsaturday I have started a new way to try and raise awareness of special needs a cause very very close to me heart as a mum to 3 special needs children. As a result of this it has also opened up a new blog for me to host the posts of #specialsaturday the new blog is for special needs
Why did I start #specialsaturday, well there are several reasons the main was when this happened to my 4-year-old daughter who has special needs wasn’t invited to a birthday party you can read that post here >> Why are parents so hurtful this just didn’t happen once but twice in as many weeks talk about a devastated little girl. She was that upset she ran out of the front door down the street, luckily she stopped but with no concept of danger it could have been a very different story all over an invite , very sad isn’t it . Then there was this status I was sent on Facebook summed it all up nicely .
Next time you see a child ‘misbehaving’ or hear a child screaming please stop and think ‘could that child have special needs or sensory issues?’. Please spare a thought for the child who struggles to stay calm and regulated and for the parents who are constantly stared at, judged and criticized.
I had an incident in the summer that highlighted this
The best bit was there was a lady in a wheelchair you know what really got me that people moved for this lady because she was in the wheelchair. They came past us and Pinkie wouldn’t move out-of-the-way . This woman had the cheek to say ” can you move, can’t you see I am disabled ” . I thought what ………… I have my 4-year-old daughter here that is maybe just as disabled who can’t walk very far but because she looks normal nobody takes any notice. To them she is just a very naughty girl.
so many people are very quick to judge without knowing the full story. In everyday life we get this as well playgrounds are the worse areas I find for bigots and people being judgemental.
Do you realise how hurt and upset your actions make parents like me feel. I myself, feel like I am a second class citizen that is not worth people talking to. i stand in the playground wishing for the door to open so I can get away from all of you and back to security of my own home. I am not ashamed of my kids or their conditions because thats what makes them so unique. If you can’t handle that fact then that is your problem, not mine
So to try to stop parents and children going through all this which I have to say is not very nice and totally upsetting. I started #specialsaturday so it allows parents to show case the positive points of special needs and the achievements that these special angels can and do achieve. So come on and learn about special needs it might make a life time of difference to someone. Please support #specialsaturday if you don’t put a post up please use the hashtag -#specialsaturday on any of your tweets. Lets get people start talking about special needs.
I have been thinking about my blog for a while ways of improving it. Well after having a chat with some lovely people on twitter I think its time for change. All the comments on the blog are the same people not only use it as a blog but a resource as well do you that’s a big compliment that you use my blog like that thank you.
Anyway some of the changes I was thinking about is firstly the name, the name is a bit long and to be honest I never expected the blog to take off as much as it did. The jury is still out on the name lol.
So with a new name comes a new look very exciting.
Then what do people think about a forum so parents can come and chat and help each other, either on this blog of the forspecialneeds blog.
Did think about combining the 2 blogs but think it would work better having 2 separate ones.
what else would people like to see on my blog do you like the ideas of reviews being on there , I think this gives you ideas of what is available and how special needs children benefit/use them.
Please let me know what you think I would love to hear your suggestions and ideas
It’s strange how one minute you can think of things then all of a sudden out of the blue you have a lightbulb moment and everything is crystal clear.
For weeks I have been struggling with not getting picked for reviews. I wanted to be taken seriously as a blogger and thought you had to tons of reviews to do it. I know my blog is different from other parenting blogs as I write specifically about autism and special needs, to be honest I didn’t think it would get many readers but these last few months have proved me wrong. In November I was in the wikio parenting rankings at 18,000 yes you read that right. December it jumped up to a ranking of 180 , January it was ranked at 38, February it was ranked at 50. Now to be this is great as it shows people are reading more about autism/special needs. Then I thought if I do all the reviews going perhaps it would be ranked higher.
Yesterday we were travelling back from a day out and I thought, why am I doing all these reviews?, what difference does it make how many read the blog?. I didn’t write the blog for the kudos my blog is all about helping people. Out there in cyberland there are hundreds of parents in the same position as me. Some scared, lonely, isolated, it these sorts of people I WANT to help. I remember when my son was diagnosed with autism when he was 3 years old , how scared,angry and upset I was. I needed to talk to people . I read all the books going but all I wanted was someone who had been through it so I could relate to what they were saying.
I think I had lost my passion and mojo to write my blog and had got caught up in all the rankings etc, instead of why I love blogging. I would still love to review things, who doesn’t like trying new things out. I have been really lucky and tested some very nice things. I think though its time to get back to basics and start to feel passionate about writing my blog rather than thinking I must do a blog post.
Today Gnome had his usual physio and occupational therapy session, to help him roll over , sit up etc as he has mobility problems .
They bought him a Leckey Squiggles chair to help support him as he sat. They tried him in this and he sat there, no going floppy as usually happens. He sat there all on his own , unsupported the first time ever he has done this. I was so very proud of him and his sat there very happy with himself of his achievement. WOW.
So the physio said let’s take this one step further and try to get him to sit up without the aid of the squiggles. The first couple of times he flopped backwards then all of a sudden they let go of him and he sat there, OMG!!!!!. So the OT sat behind him and Gnome was sat there quite happily without any support, he was chatting a way and trying to reach for his toys.
What a first, my Gnome sat unaided for the first time in his life. He is still very floppy and lost control of his body a few time I think he always will be like that unfortunately but least now he can sit up and see the world from a different perspective
I am so worked up about tomorrow, it is Gnome’s 1 year old development check and we know he is going to fail it but still not looking forward to finding out how much he will fail.
Right here are how I see things
1. he is unable to roll over without assistance, so that’s one thing
2. No way , no how can he sit up let alone unaided.
3. He is making no indications to crawl as he is unable to support his head whilst on his belly.
4.He is not talking can only say dada, daddy, hiya
5 He can not play with toys as they should, like building bricks, stacking things etc.
6. He will only eat Hipps organic rice pudding for a 4 month old, drink baby milk
7. he doesn’t sleep well at night, we are up at least twice a night a many a night Mr Savvy gets up at 4am as he won’t settle back down
I know we are going to have a talk on weaning but that seems futile as he can’t eat solids he gags on them. He is unable to feed himself as he can’t sit in a high chair because he can’t support himself. We are going to see about the sleeping problems but again there seems little point as it’s who Gnome is . Convinced he was a farmer in a previous life.
Despite all of the problems I would not alter him at all he is my loveable Little Gnome
These last few months have been sheer hell for my family so much has gone on, kids been ill, hubby been ill, money worries you know all the general things of life.
Little Gnome is my major concern as we are sure what exactly is wrong with him and we still don’t know what we are dealing with. We had a trip to the doctor’s re his chest infection and the doctor put a referral for him to see the pediatrician as soon as possible, so a step in the right direction. Then today I had a phone call from the Occupational Therapist to say they have a chair for Gnome that he can use in the house to give him support so another step in the right direction.
I was at school picking Pinkie up and the teacher looked over at me and I just knew I had to talk to her. I just blurted out
“Can I have a word ”
I hadn’t meant to, it just happened,
“Do you know where I can get some support from ?” that was it I was in floods of tears, where did they come from I can normally keep it all together whilst I am out is it at home where I do my crying,ranting,screaming. Safely behind closed doors.
The teacher took Pinkie and Perkie off me said right come with me we will get this sorted. She made me a cuppa and we sat down.
Out of no where it all poured out what was wrong with me , how I couldn’t cope I needed help.
Well I was half expecting “pull yourself together, come on, stop being so silly “, but instead I received right let’s see what we can do for you. I was lead in the headmistress office and was congratulated for coming to them saying I needed support. I was absolutely astonished it was a rushed meeting as I needed to be home for Diva but even in that short space of time they gave me hope .
Tomorrow morning I am having a proper meeting with the headmistress, the teacher and the SENCO to see what support I can get. We are also setting up a regular meeting on a Tuesday afternoon so i can discuss any problems and concerns I have. Or I just want a natter over a cuppa. How good is that, maybe things have started to look up.
So even when you think you’re at your darkest hour, there is always someone (maybe someone you wouldn’t have expected ) there to listen and help you. Remember It’s always darkest before the dawn